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About Our Organization

The Massachusetts Spina Bifida Association is a volunteer-based, non-profit organization dedicated to enhancing the lives of people in Massachusetts affected with spina bifida by providing a community of support, advocacy and education. We are dedicated to helping individuals with spina bifida in the Commonwealth achieve their maximum potential. A member of the Spina Bifida Association of America, the MSBA was founded in 1973 to: - Promote the prevention of spina bifida - Provide support where it is needed most within the spina bifida community - Raise awareness about spina bifida in our region. Spina bifida is the most common permanently disabling birth defect in the U.S. today, affecting approximately one out of every 1,000 newborns in Massachusetts. A neural tube disorder, spina bifida can cause complex and serious health issues in numerous systems within the body. Children born with spina bifida may need multiple surgeries and other extensive medical care throughout their lifetimes to address orthopedic, urological, neurological and other issues. However, thanks to advances in medical technology, most children born with spina bifida today live well into adulthood and are thriving members of society. Funds raised in this year's marathon will allow for our expansion of several peer resource initiatives, including the 'Parents Helping Parents' and 'Teen and Young Adults' programs. Donations will also support the MSBA's ongoing commitment to provide financial assistance to our members for equipment, educational aids, camp and school fees and other needs. Finally, funding will help support our educational programs, newsletter and regular social events which are the foundation for the spina bifida community in Massachusetts.






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